We have been home for 4 days now.Emily is feeding from the bottle very well. I think she will be catching up with all the weight gain that she needs very fast.Tomorrow, we are going to have her stitches removed from her poor chest. I think it will hurt quite a bit for her but compared to what she has been through these 2 months, it will be a breeze. And moreover, this is the last bit from her surgery. She should be gaining speed to a full recovery and also start growing like a baby should.
Whenever I bathe or change her, I will cringe at the sight of the stitches and think about the permanent scar on her chest. I hope she will take the scar positively and take it as a reminder of what she has been through and how precious life is.
When I look at her now, how she sleeps so peacefully, how she feeds to quickly and how she sometimes flashes her smile that melts my heart, I am really happy that the worst times are over. I tend to forget that she may have other problems related to her syndrome. But then again, it's a 'may'. So I guess there is really no point in thinking about the mays and maybes. Well, I should just enjoy taking care of a young life and nurture and love her as I did her older siblings.
Family and friends have been very supportive of the whole situation. Concerned family members and friends from work and church have visited us in the hospitals and at home quite a bit. We are really thankful for all their concerns and especially for their prayers which I really believe helped Emily a great deal in her recovery. As suggested by my dear friend, I went to church today to offer thankgiving mass for Emily.
As I said, this is a journey and Emily, we as parents and her siblings, as well as all family and friends are in this together. And the journey continues, we hope we have more happy times then sad ones...
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