Life with Emily, in hospital still...

April 23rd, 2012: This morning the trainee doc took Emily's blood to test for urea level I think. This is to test her reaction to a medication which will help control her heart failure. Emily has so many holes on her hands and feet because of the many attempts over the weeks to draw blood from her or to insert a intravenous tube for medication purposes. Each time they take her to do that, she will wear herself out crying. Such a tender age and so much pain that she has to go through.  I feel like a bad mother :(. So sorry, Emily.  On a positive note, she weighed in at 2.54 kg today! Hooray! She was 2.42 kg about a week ago, so happy she is gaining weight which she seriously needs to. She has to be bigger and stronger to go through the heart surgery.  This is how I start my day with Emily at the hospital. At 3 am there's a feeding and every 3 hourly after that. At 6 or 7 am, we give her a wipe and change of clothing. Diaper changes are throughout the day and that is pretty often. I do get my breaks when she sleeps.  I can make short trips home or go buy something or just read/rest/ relax. It's not that difficult taking care of her here, only I don't get to sleep through the night and no TV or access to a PC. It's only 7.30  and I think I will go back to bed for a bit, been up since 5.30am and was up from 2.30 to 3.30 am earlier. Cheerios.