IJN, Long Awaited...

May 17th: This is a date we have been waiting for, our 1st appointment at IJN after almost 1 month of waiting in the ward. In between, we have consulted Gleneagles's Dr Lim twice. He is pretty famous in the field of paediatric cardiology, everyone in the same and related field seems to know or heard of him. He is very nice and explained everything well to us. We wanted very much to put Emily under his care but both my hubby and my company do not cover the cost there :(. Which is why we wanted to have a go at IJN to see what options we have.  Finally, the day came. The ambulance was 2 hours late and we reach there at about 11am when we were supposed to be there at 9am. But it was fine, we did not wait too long to see the doctor. The diagnosis confirms gleneagles finding that Emily has 2 large holes, one between the atriums and ventricles each. Operation must be done to correct them. They told us to go back and wait for an operation date which will most probably happen in 2 to 3 weeks time or earlier if there is any cancellation of surgery. I was reluctant to go back with that and asked since my hubby's company can cover the cost & even we are willing to foot the cost ourselves, can we get a faster date? To my delight, he made a few calls and said YES!  We are to meet the surgeon in IJN tomorrow  and I think we will get the operation date and estimated cost. I hope the operation can happen early next week.  Meanwhile, Emily although is pretty stable and eating well, is beginning to have problems in her lungs because of prolonged oxygen dependency. She is on asthma like medication for that. That got me really worried. We cannot stay in the ward like this much longer or other problems may start creeping in. So I am really hoping we can have the operation done very soon. On the bright side, her weight is now 3.2kg. My feeding efforts in these few weeks paid off! Really want to bring her home and begin our usual routine life. Staying in the Hospital makes me a bit mixed up. I tend to lose track of time and forgets the last hour that I fed  her! Gotta get out of here soon, praying so.